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If you are using, or wish to use health insurance to access care, it is helpful to know that some health information may be reported by your insurance company (not by a provider) to a national insurance data collection organization (operating in the US since 1902).  A provider who bills insurance will use various diagnosis codes in billing the insurance company; in certain scenarios health information that is sent to your insurance company as a matter of billing, could be forwarded by that company to the MIB (see below) without your specifically expressed permission.  Most insurance companies participate in what was once called the Medical Information Bureau, still operating as MIB.  More information can be found here: https://en.wikipedia.org/wiki/MIB_Group.  In self pay scenarios, since the insurance company is not billed with a diagnosis code, the sharing of such information, if it were reported, is not occurring.

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For current videos as updated on the HHS website, please follow this link: https://www.hhs.gov/hipaa/for-individuals/guidance-materials-for-consumers/index.html

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(Videos about your medical records, security for providers,  privacy practices and more)